NOF maintains “The Healthy Bones, Build Them for Life” Patient Registry which collects anonymous information about the experiences of patients and caregivers. This information is then shared to provide information and improve osteoporosis care.
Go to https://www.nof.org/hbfl/ to sign up.
Results can be accessed at https://cdn.nof.org/wp-content/uploads/Registry-Slides-Oct-2019_Patient-Perspectives.pdf.
Reviewing the data gives insights into how osteoporosis affects individual lives and how people respond to treatment options. As more patients join, more information will be available.
Jay Ginther, MD